Writing with a Chronic Illness.

I’m a writer. I love to write, i’m always tapping out or scribbling down something. I write poems, short stories, blog posts and bits of anything that comes into my mind. My dream is to write a book and have it published. I dream of walking into my favourite bookstore and seeing it on the shelves with all the other books I love to read. But writing with a Chronic illness is hard work, really hard work and it’s so frustrating it makes me want to scream.

Being a good writer means discipline. It means having the motivation to write every single day but it’s hard to do that when you feel like your brain is on fire. The words get jumbled inside my head and I can’t find the words I want to say. I get frustrated alot and my plans for different projects have to put back to the side so I can rest and come back to it later.

Writing is my passion. It always has been. It saved me from a lot when I was a child. When i was scared or alone or hurt, I’d grab out my pens and pad and start writing a story and I’d disappear into this make believe land that I created myself. I’d write about things that were so far from reality that I’d disappear into this fantasy land and I’d only come back when I was happy again. I dont remember any of those stories anymore, all my old pads were burnt when I left home. I wish I had them now so I could look back on them and realise how far I have actually have come with my writing skills. I do get so down on myself and tell myself that I’m a terrible writer and i’ll never write anything good enough that people will like reading.

Being a good writer takes time and practice and the only way to improve is to write. A lot of my writing today looks like a child has took to the page and attempted to write an adult story. Maybe that’s just how I perceive it and maybe I’d just been too down on myself.

Put together the brain fog from my chronic illness and my terrible procrastination skills and you will find out that not a lot of writing gets done on my end anymore. That frustrates me to no end because writing is my passion, it’s my hobby and it’s my dream to write a book that people will actually enjoy reading. I used to be able to write page after page before I got unwell, whether it was in my journal of writing bits of my book.

Some of my achievements I will mention as not to be so down on myself. But I have kept this blog and my book review blog running for over 6 months and that does make me proud. This blog is focused on chronic illness awareness and my health journey. And my book blog, I talk all things books. Because if you know me, you will know that I love to read. Reading has also been another one of the things that saved me from so much hurt as a child.

Tell me your experiences with writing in the comments, whether you have a chronic illness or not. Any tips will definetly be appreciated because I need to get my book out there. I would love to hear from writers who are published or not published. I would love to connect with some of you out there! Follow me on my social media links and come and chat to me about writing or books or just general life.

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Book Review Blog.

– Charleigh.

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How Anxiety Affects My Life.

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 I have suffered with anxiety for many years. It’s something that cripples me and seriously affects my day to day life. I hid my mental health problems for many years, I refused to acknowledge there was a problem, I did everything I could to hide it. Everything always comes to the surface though, you can’t bottle things up forever.

So now I’m speaking up. I started this blog in the hopes to educate people on the different aspects of my life. If I can educate one person on anxiety or PTSD or FND. If I can teach a friend or a mother or a teacher or even a doctor on how mental and physical illness affect someone on a day to day basic. If I can help someone to understand what maybe one of their loved ones is experiencing then this blog will have served it’s purpose.

Anxiety can affect anyone and at any age and you don’t have to have had anything traumatic happen to you.
It can strike even the most confident person. It can stop you from working, socialising and going to school.
It’s a lot more than ‘just being shy’. Everyone’s experiences with anxiety are different. Not everyone with anxiety suffer with panic attacks. It isn’t always seen. I can only speak about my experience with anxiety. My anxiety will be completely different to the next person.

My anxiety stems from my past. I am open that I have PTSD, I am however not open about why I have PTSD. Most things I get anxious about have already happened. I panic that history will repeat itself and I get stuck in the same cycle day after day. I am a worrier. I worry about everything. I worry about money, my family and friends, my pets. I worry that people or my pets are going to die or get seriously unwell. I am always worrying about something.

Anxiety makes me feel like I’m walking around the streets with no clothes on. It makes me feel exposed and like everyone is staring at me and plotting to hurt me. It feels like a million thoughts are clouding my vision and my rational mind is buried by all this panic. Public transport panics me, crowded shops and streets, ordering my food at a restaurant, paying for my things at the supermarket. I could go on but we’d be here forever.

They’ll be days when I’ll shut the world out and I won’t want to talk to anyone because I’m terrified of this parasite that’s causing me to panic. That’s what anxiety feels like. It feels like a parasite has attached itself to your thoughts and it’s attacking you, hour after hour, day after day. No matter how hard you try, you can’t get rid of this parasite. It’s decided that your thoughts are it’s new home.

I have good days and bad days. But lately it’s mostly bad days. The memories of my past threaten to suffocate me and the anxiety of it all sometimes gets too much. It’s impossible to know what to do and feeling so trapped and suffocated hurts so much, sometimes I don’t want to be alive. It’s exhausting.

My experience will be different to the next persons. Everyone’s anxiety affects them in different ways. Some people can’t out alone, some people can’t use public transport. Anxiety is a little demon that sits on your shoulder and whispers things in your ear. You try so hard to ignore it but it’s hard to think rationally when your mind is filled with panic.

It’s terrifying and isolating. I get so angry when someone doesn’t understand or disregards it as being ‘lazy’ or ‘anti social’ or even stupid. It’s not any of those things. I think some people think like this because they haven’t been educated about anxiety, they maybe don’t know what it is or understand that it’s an illness that needs to be treated just like a broken leg would. So many people across the world suffer from this horrible illness.

You can’t always see that someone is anxious. Sometimes you might not even know unless they tell you.

Anxiety ruins lives and isolates so many people. It’s a real illness and it can be very hard for people to live their lives in the way they want to.

Anxiety isn’t something you can just switch off whenever you feel like it. It’s always there, it’s always controlling you. Anxiety is real.

Learning to Say No and Other Musings.

Lately, I’ve been thinking what I want to do with this blog. My main focus is raising awareness and trying to educate people on my chronic illnesses and life as a chronically ill person. And hopefully learning things myself along the way.

 

Update.

I haven’t done an update for a while so I’ll get that out the way first. Things have been pretty crappy to be honest. I have FINALLY moved house which feels amazing. I was living in a first floor flat and when I lost the partial use of my legs last May, I had to bum shuffle up and down the stairs whenever I wanted to go out. The flat was not accessible in the slightest and it was honestly awful – absolutely awful and so disheartening. My housing association left me waiting there for 7 months. 7 MONTHS. Which I think is absolutely disgusting and I dread to think how many other people are out there in the world in my situation – or worse.

So at the end of January, I lost the complete use of my legs and what I mean by that is I can’t move them at all now unless I physically pick them up and move them. It’s awful and so heartbreaking and not knowing how my condition might progress is so scary. I am going to do a post on my main chronic illness FND soon so watch out for that. I saw occupational therapy last month and they have given me some equipment which is really helping me.

I finally have an appointment with the specalist I mentioned a few months ago. It’s in London so it is going to a trek but if it gives me some small grain of hope then it will all be worth it. It’s just a pain that I have to wait until July BUT I am just so grateful that he is actually going to see me. I’m also on the waiting list to see the neuropsychologist for my NEAD.

I think I’ve probably covered everything health wise. I’m just trying to keep busy and distract myself and doing little bits here and there to try and help me feel a bit better about myself.

Learning to say no.

If you know me, you will probably know that I am absolutely terrible at saying no. I hate letting people down and I hate admitting to myself that I’m not able to do everything I used to be able to do. I also hate saying no to myself. If I have a mental note that I have to do things then I hate not completing them. But I am learning and I am trying to say no more often. I’m trying to pace myself and listen to my body – something I never really was able to do before. I am quite lucky in the sense that most of my friends have chronic illnesses themselves so they understand if I don’t reply to their message straight away (or at all) or if I can’t do something. My best friend understands that I’m not able to do something we have planned or help around the house.

I really do try to think positive and focus on the things that I can do rather than what I can’t. It’s not always easy and sometimes I just need to wallow in self pity.

I think that’s all I have to say at the moment. I am trying to grow this blog and raise awareness – and doing my favourite thing, writing. I want this to be a place that people can relate to my posts and maybe learn a thing or two. If there’s anything you would like to see please let me know.

Well if you’ve made it to the end of this post – well done you! ☺

Come and find me.

You can contact me here; charleighsbooknook@hotmail.com

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